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Latest announcements and gatherings
8th Annual Leadership Summit and General Assembly of Patients, Caregivers & CBOs
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The Cellie Coping Kit helps sick kids manage the stress of treatmentDesigned by Marsac during her fellowship...
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Improving disease knowledge in 6- to 10-year-olds with sickle cell disease: A quasi-experimental studyBackground: Increasing knowledge and un...
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Health Literacy and Disease-Specific Knowledge of Caregivers for Children With Sickle Cell DiseaseThis study was conducted to measure the ...
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T-Boz: Vote on Tuesday Like Your Health Depends on ItAs a mother, I know that I have a respon...
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Capitol Hill Briefing Held to Encourage Sickle Cell Research and TreatmentEarlier today, a briefing was hosted on ...
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4th Annual Virtual Caregivers Summit – Sickle Cell Community Consortium4th Annual Virtual Sickle Cell Caregiver...
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Rare Diseases and Orphan Products Breakthrough SummitEach year, the NORD Summit, one of the l...
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.