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Latest announcements and gatherings
8th Annual Leadership Summit and General Assembly of Patients, Caregivers & CBOs
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Disease knowledge, illness perceptions, and quality of life in adolescents with sickle cell disease: Is there a link...Disease knowledge, illness perceptions, ...
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Mobile health intervention for youth with sickle cell disease: Impact on adherence, disease knowledge, and quality o...Background: Adherence to illness self-m...
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Hemoglobinopathy Counselor Training Course – VIRTUALUPDATE! 2020 Hemoglobinopathy Counselor ...
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Rare Across America 2021Rare Disease Legislative Advocates (RDLA...
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Southeastern sickle cell conferenceSickle Cell Foundation of Georgia is org...
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Sickle cell patients, families and doctors face a ‘fight for everything’Francesca Valentine is gearing up for a ...
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TBoz on Living with Sickle Cellhttps://www.youtube.com/watch?v=n0JFsTmD...
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.